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Help build a research resource for scientists studying inherited genetic diseases and chromosomal abnormalities: Donate a blood or tissue sample to the NIGMS Human Genetic Cell Repository at the Coriell Institute for Medical Research
|What is a cell repository?
A cell repository is a bank that stores cell lines. The NIGMS Repository contains well-characterized, high quality cell lines for use in research. To make a cell line, human cells are taken from a blood or tissue sample and placed in a container with a growth solution. This process is called cell culturing. The cultured cells can then be “harvested,” frozen, and stored. The medical and family history of the sample donor is also collected. Scientists can access banked cells and use them for a variety of purposes, including: finding new genes, studying how cells function, and developing new ways to diagnose, treat and possibly prevent genetic diseases.
Why should I donate a sample to the NIGMS Repository?
Donating a sample to the NIGMS Repository directly supports and makes research possible. Samples in the NIGMS Repository have been used in over 5,500 scientific publications by researchers in more than 50 countries. By donating a sample, you provide scientists around the world with a unique opportunity to learn more about genetic diseases and how specific mutations influence the course of disease.
One of the key barriers to finding treatments or cures for rare, genetic diseases is the lack of available human cell and tissue resources for scientists to use to test potential drug compounds or gene- or cell-based therapies. Testing candidate drugs or therapies using cells from individuals with rare genetic diseases can help scientists determine which approaches are most likely to work and be safe enough to test further in human clinical trials.
Is there any cost to donate a sample?
The NIGMS Repository pays for sample collection kits and shipping your sample(s) to the Repository. It is recommended that blood samples be collected during a scheduled doctor’s visit. The NIGMS Repository is able to reimburse you up to $40 if you need to pay to have your blood drawn at a draw station, like Quest or LabCorp. The NIGMS Repository is not able to reimburse you for any costs associated with having a tissue biopsy. It is recommended that tissue biopsies be collected during a scheduled surgical procedure.
Will I get any results or information if I donate a sample?
We are not able to tell you how your sample was used or who obtained materials made from your sample. Sample donors will not receive results of any testing performed on their sample or materials made from their sample.
Will my information be kept private?
We take the privacy and confidentiality of each donor very seriously. The following measures are in place to protect donor privacy:
If you decide that you no longer wish to participate, you may contact the NIGMS Repository by e-mail at NIGMS@coriell.org and request that your remaining undistributed sample(s) and clinical information be withdrawn.Questions?